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hip displaysia (clicky hips) Lock Rss

hi there just wondering if any one else is going threw this with there bub?? lil gemma was found 2 have a dislocated hip at 6wks, went in2 a pavlik harness at 7wks and then in2 a vonrosen splint at 8wks. yes we r coping but would b really good 2 have sme feed back from other mums going threw the same thing wif there bubs, cheers looking 4ward 2 hearing replys.oh and now she is 9wks lol.
we have not had to go through the same thing, but I thought I would post and tell you that I was born with the same condition, and had the same treatment, and have absolutely no problems today

that was 38 years ago, so I'm sure that the techniques are even better today and your baby will be fine once her treatment is over smile

Heléna

Liam Evan, 2

Hi,

I was born with severe hip displaysia in both hips when I was born (1981) Because it was so severe in both hips, they therefore felt the same in the checks by doctors and CH nurses, It wasn't picked up till I was 15 months old. This was when I began walking and my dad realised that I walked with a limp. I had to have surgery on my left hip (the worst - had no hip socket and no neck-of-femur) Surgery included taking bone from the top of the back of the pelvis and forming a hip socket and building up a neck-of-femur with bone chips. The right hip wasn't as bad so they let that help itself with the plaster and brace. I was in plaster for a couple of months and then a brace (harness thing) for a few months also. I had to move into a king size single bed as I didn't fit into a cot or single bed, my dad made me a wheel chair and detachable table.

I remember when I was about 13 I had my mum take me to my doctor as I was in pain and they seemed different in size.... He said that yes there was some cosmetic difference (most people don't notice) but there was nothing wrong.

I had xrays every 6 months till i was 6 and everything was seen to be fine. I now am having trouble with my hips though. Whist giving birth to my children I couldn't be in any position except on my back (was slightly sitting for 2nd) My hips wouldn't hold me up.


My dad saw my specialist a year or so back (for his own feet problems) and he said that he would be very suprised if I didn't get arthritis by the time i was 30. He wants to see me when I have finished having my family so that he can start me on Physio to help prevent the arthritis. I would be having to have physio the rest of my life basically. I still want another bub so I am putting up with the pain for now.

I have discovered that when I am having a bad day with one of my hips, my foot turns in slightly as i walk. People have asked if I am pigeon toed... I hardly notice it.

Just lately I have been in more pain than before. Yesterday was my worst. Both hips were playing up... I could hardly walk. I had to sit down and rest from just hanging out one load of washing!!! I felt like a cripple.

Maybe I need to speed up my plans for bub number 3.

I had to fight to get my children's hips checked by ultrasound. My son was fine but my daughter had very minor displaysia which was uble to fix itself in a few weeks... thankfully.

I hope everything goes well with your daughter. My story is an extreme case but it might help a bit. It has already by my xrays being used as teaching aids for new doctors and surgeons.

SMILE!!!!

Andrae,WA - Liam, Siobhan and Erin

Hi, Please forgive my lack of understanding regarding this condition, though after reading this I must ask someone's opinion. When my eldest daughter was born a HCN commented that she may have a clicky hip. My Dr sent her for an xray which came back fine. Now my daughter is 5 and she has a very annoying habit of being able to click her hips from side to side when she is sitting down, or when sitting on someones knee. It makes a repulsive noise(which she finds very amusing). She claims it doesn't hurt, but the noise is so grating that I am worried that this is serious. Is this Hip Displaysia???
thanks
Julie

Julie, WA 5yr,3yr & newborn

Posted by: Andii81
Hi,

I was born with severe hip displaysia in both hips when I was born (1981) Because it was so severe in both hips, they therefore felt the same in the checks by doctors and CH nurses, It wasn't picked up till I was 15 months old. This was when I began walking and my dad realised that I walked with a limp. I had to have surgery on my left hip (the worst - had no hip socket and no neck-of-femur) Surgery included taking bone from the top of the back of the pelvis and forming a hip socket and building up a neck-of-femur with bone chips. The right hip wasn't as bad so they let that help itself with the plaster and brace. I was in plaster for a couple of months and then a brace (harness thing) for a few months also. I had to move into a king size single bed as I didn't fit into a cot or single bed, my dad made me a wheel chair and detachable table.

I remember when I was about 13 I had my mum take me to my doctor as I was in pain and they seemed different in size.... He said that yes there was some cosmetic difference (most people don't notice) but there was nothing wrong.

I had xrays every 6 months till i was 6 and everything was seen to be fine. I now am having trouble with my hips though. Whist giving birth to my children I couldn't be in any position except on my back (was slightly sitting for 2nd) My hips wouldn't hold me up.


My dad saw my specialist a year or so back (for his own feet problems) and he said that he would be very suprised if I didn't get arthritis by the time i was 30. He wants to see me when I have finished having my family so that he can start me on Physio to help prevent the arthritis. I would be having to have physio the rest of my life basically. I still want another bub so I am putting up with the pain for now.

I have discovered that when I am having a bad day with one of my hips, my foot turns in slightly as i walk. People have asked if I am pigeon toed... I hardly notice it.

Just lately I have been in more pain than before. Yesterday was my worst. Both hips were playing up... I could hardly walk. I had to sit down and rest from just hanging out one load of washing!!! I felt like a cripple.

Maybe I need to speed up my plans for bub number 3.

I had to fight to get my children's hips checked by ultrasound. My son was fine but my daughter had very minor displaysia which was uble to fix itself in a few weeks... thankfully.

I hope everything goes well with your daughter. My story is an extreme case but it might help a bit. It has already by my xrays being used as teaching aids for new doctors and surgeons.

SMILE!!!!


Hi, Just thought I'd update how things have gone for my family and our hips. I had #3 and she had bad hips too. Hers were worse than #2. SHe had to wear double nappies (one over the other) for 6 weeks to help hold them in the correct position. THe Paed was able to dislocate her hips with out really trying when doing the rotating test. #3 had another scan at 7 weeks and it had all fixed itself. PHEW.

On the other hand, mine has gotten worse. Having had 3 kids and time has seen my hip deteriate badly to the point that I dislocated it about New years. I got it xrayed and the socket seems to have not continued to grow through puberty with me. I now have the hips similar to a baby with bad hip displaysia. The socket isn't big enough to keep the leg bone in it. I went to physio and all they can do is give me exercises to strengthen the musles around my hip and shorten the muscle in the hope of keeping the bones in place. I am a reasonably active person but I am now restricted to light walking (took 35 mins to walk less than 2kms to the pools with kids the other day and then 30mins back again after the kids went swimming- not me- and i had to sit down the rest of the day) cycling gentley and swimming gently. I'm not allowed to stretch the muscles around the hip too much or i will dislocate it again. I'm waiting to see the Orthopaedic surgeon in Feb to see what he can do for me. At this stage its looking like a hip replacement... not bad for only 26 years old.

Andrae,WA - Liam, Siobhan and Erin

Sorry to take so long to see this and answer you.

There is also a condition, hyper flexibilty (or something similar - the physio told me about it) that means that your joints are very stretchy and means you can often dislocate joints easily with out it hurting. I have this also so I really have no hope for my hip. I can dislocate my shoulders or at least partly. and being able to "crack" joints throughout my body with no pain is also attributed to this.

I think this is more likely what your daughter has.

YOU may want to get her checked again though as they use ultrasound to check babies because their bones have not formed enough to been seen by xray clearly.

Andrae,WA - Liam, Siobhan and Erin

Hi Randy1,

My niece had bilateral hip dyplasia (both sides) and she went into a hip spica (the sling) and was in it for 4 months.. She is now a very happy and ACTIVE 2.5 yera old, with no ill effects at all!

My sister said it was difficult to do the everyday things, she wouldn't sleep all that well 'cos the shape of the sling made it hard for her to lie flat, she wouldn't fit will in the pram, settling her was a bit hard 'cos she was so rigid. But she adapted and it was only a short term thing, really!!

Hope that helps you a bit more..

hello and how is my little jasmine?
my jas is getting ready for the opp on wed!

im kinda ready for us to go there after thinking that there is a lot of sicker kids out there and my little jasmine will get beter,

hope everyones little gems are going well talk soon,
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