I'm not sure what ur wanting... if it's stories or support or acknowledgement, so... smile
My neice has CP (Full Body Inclusive Spastic Hemiplegia). She turned 2 last november.
She had infantile spasms seizures from birth but was immediately put on Phenobarbitone (Anti-Seizure Medication) & then was gradually weaned off it. I'm happy to say that she is now fully weaned off it & her last EEG came back clear. We were told that she has a slight chance of redeveloping seizures at some stage in her life but we have to take each day as it comes smile
She is a beautiful, determined little girl & it's so frustrating, for her & us, (to say the least) to see her struggling with the little things that we take for granted. Even holding her head upright for extended periods of time takes a lot of energy out of her.
But it is more rewarding than anything to see the accomplishments when she does acchieve them (like crawling!!)
I hope that you have a good support network around you & with some work you will see this child flourish.
All the best...