It used to be only if i held her under the nappy, but is now happening if she is in any upright position: sitting being held up. if her legs are straight then it doesnt happen.
My midwife saw me every week to make sure she had good femeral heartbeats since birth, because specialist refused to look at her until she was 12 weeks. as soon as she turned 12 weeks, my midwife demanded for the specialist to see her immediately. i got a phone call saying her appointment was in 4 weeks, told her and then got a phone call the next day saying the appointment had been moved to today (2 days after the initial phone call).
The specialist said he has only ever heard of one other case but the baby grew out of it before she was 12 weeks.
As i said it is only getting worse. She is being sent for an ultrsound to look at the blood flow in her legs but dr is pretty sure it will come up clear.
I am starting to really worry, its not getting any better. anyone else had this? and got worse? what happened?
Thanks to all who have read my long story, i hope someone out there can help me smile
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